Do you know what celiac disease is? I didn’t, until my sister was diagnosed with it back in like, 2008. Most people have a 1 in 100 chance of having this disease. If someone in your family has it, like I do, now its 1 in 10. It’s genetic and hereditary. It is the most undiagnosed disease out there. Why? Most practitioners don’t know what to look for, because the disease manifests itself is SO many different ways. There are over 300 signs and symptoms to give you clues, according to Recognizing Celiac Disease. It’s estimated that 2.5 million Americans have undiagnosed celiac disease, and it can take 6-10 YEARS to get a diagnosis!
Enter people like Nadine Grzeskowiak, aka the Gluten Free RN who makes it her mission to get the word out, change how practitioners view symptoms and to educate anyone who will listen. She knows from experience what it’s like to suffer with mystery symptoms and not have the answers.
According to the Celiac Disease Foundation, adults are less likely to have digestive symptoms. They are more likely to have:
The most common symptoms for children are:
Nurse Nadine talks more about how these symptoms and many others are treated in the medical community, without a real investigative search as to WHY they are occurring. Often celiac disease is at the root of it.
It is difficult to get an accurate diagnosis of celiac disease. Blood tests and DNA tests don’t test for EVERY possible marker. Even the “gold standard” intestinal biopsy may not grab samples from an inflamed or damaged area. Like pregnancy tests, you will never get a false positive – but a false negative is not unheard of.
Some people have the symptoms, improve when gluten is removed, yet test negative for celiac disease or a wheat allergy. The terms non-celiac gluten sensitivity (NCGS) and non-celiac wheat sensitivity (NCWS) are generally used to refer to this condition. It is estimated that the impacted population is equal to or even exceeds the number of individuals with celiac disease (the vast majority of whom remain undiagnosed).
If you have celiac disease, the only treatment is going 100% gluten free – food, skincare, airborne, no cross contamination. Not prescriptions. Not surgery. Not medical interventions. Just completely avoid gluten. It’s actually quite easy when you learn how and thankfully, many restaurants and food manufacturers have jumped on board to accommodate us.
Some people seem to think it’s some kind a death sentence when you can’t have bread, pasta, Coors Light or VooDoo Donuts. Really? None of those things have any nutritional value anyway. After a while, you don’t miss that stuff at all. You are too preoccupied with finally feeling good again.
Why doesn’t EVERYONE know about this disease and EVERY practitioner be trained to suggest this simple food change to save lives? There’s no money it. It would hurt sales of those heavily subsidized commodities of wheat, barley, rye and oats. They add wheat to almost everything, particularly once it was discovered that it increases our appetites! (“Bet you can’t eat just one…”) Education efforts have been stymied. Misinformation is spread all over. Research avoids finding the truth (who would fund it?). Our government certainly won’t push for change or answers on our behalf.
You can do your own experimenting to see how gluten affects you. Try removing all grains from your diet for 30 days and see how you feel. Any better? If so, give it another 30 days, and assess how you feel again. This approach costs no money and it can done by anyone. Grains are not required nor essential to the human diet, so you won’t have to worry about any “grain deficiencies”.
I know from experience what a difference it can make to be free of gluten. Don’t wait YEARS suffering from your own mystery symptoms. Don’t let a loved one suffer either. To learn more from Nurse Nadine, you can order your copy of Dough Nation by clicking the link. #ad
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